So much has happened since last time that I will have to extend my limit to two pages in future. As I was writing the last one Nash told me of Mischelle. She is a well known South African poet and author. When she went to Nash she couldn't keep awake for more than a quarter of an hour, and was on the point of committing suicide. She was virtually better in a week.

As a tribute she hopes to write a book about Nash's patients. She may have contacted me by the time you receive this. As you know no-one is given any details about patients until they wish to have their identities known. It might be an idea if you contact me to let me know if you would agree to Mischelle writing about you when you are better.

Emmylou Morey
Emmylou was the second patient cured in the U.K. Nash tells me that 'she was treated without success by many U.K. specialists'. I spoke to her this morning (25th July) and she told me that her cure took place in a very strange way. She went to South Africa for a holiday last year. A friend met someone who told her that she had been cured of CFS by Dr. Petrovic !

Nash tells me that about one person in seven writes a testimonial for him. Goodness knows what the ratio is for someone who will conduct a campaign to gain recognition for him. That is what Emmylou is doing. I said to her that I was amazed that she was well enough to take on such a task. She said that she was feeling great, and looking forward to it.

Emmylou lives in the Isle of Wight. I phoned her at 7.00 a.m. This was 10.00 p.m. local time. I am sure that Emmylou would love to hear from someone else in Australia. (0011-44-1-983-754-859)

She has tried to contact Esther Rantzen to tell her that her daughter could be cured. Unfortunately it is difficult to get through to famous people.(In July 1996 Esther said that she had already received 4,000 letters.) A synopsis of an article in the Daily Mail - Tuesday the 23rd of July 1996

Well known T.V. presenter Esther Rantzen produced a television programme in 1996 regarding her experiences with daughter Emily's illness. Emily is nineteen now. She has had ME since she was thirteen. She developed it after having glandular fever.
Emily didn't suffer badly at first, but it kept recurring, getting worse at each stage. By January 1995 she was struck by muscular pain and extreme fatigue. Esther began to fear that Emily had a brain tumour.

Esther said that she was lucky to be referred to a consultant neurologist so that Emily missed the stigma of being diagnosed as suffering from hysteria, which is often the case with people referred to psychiatrists.

The consultant explained that ME was an illness which affects the hypothalamus, a part of the brain that controls such functions as energy, mood, and temperature control. He explained that medical science still did not know everything it controlled.

Esther said that because the diagnosis of hysteria still lingered it was virtually impossible to obtain research funds. A doctor who had a lot of ME patients was told not to allow any of them to come in when the Research Council came in to look around.

Emily is on anti-depressants to allow her to sleep. She can't go to school.. She was a brilliant student with nine As in her GCSEs. She has now lost touch with her friends, and she has no social life.

Esther and Emily just live in hope that one day she may get better spontaneously. Apparently in England the average length of the sickness is four years.

One doctor on the TV programme said that many of her patients were market gardeners who work with organo-phosphates. Esther said that some people think that it may be related to pollution.
Esther said that now all the family eat totally organically - she is not willing to take the risk of coming into contact with organo-phosphates. Emily wasn't well enough to appear on the programme. She said,"Listen to the patients. They know how they feel, and they're not making it up."

Esther says that researchers believe that there could be up to 600,000 sufferers in the United Kingdom, although only 150,000 have been officially reported. She hoped for a properly funded and resourced research programme. Some researchers were already looking at a possible linlk between ME and M.S.

Thanks

Many thanks to the person who provided the above article. He has reason to be an expert on CFS. He fears a Spanish Flu type epidemic in Australia because he fears that the number of CFS sufferers could bring the country to a halt. He provided the next two paragraphs also. (He is a keen Radio National listener.)

Politicians are not immune

Within the last forty-eight hours (31st July 1997) a prominent thirty seven year old politician in Scotland committed suicide. He was the Labour M.P. for Paisley (Scotland). He was part of Tony Blair's team that was recently swept in to office. He had CFS.

I cannot speak with anyone without them asking why CFS support groups keep this cure quiet. Nash said that he cured a pilot group in South Africa. The local CFS support group said that if the patients had not relapsed after six months they would announce that he had a cure. It is now three years later and they haven't yet made an announcement.
Saddam Hussein (Is to blame !)

To-day (31st July) it was reported that America has admitted to bombing two of Saddam Hussein's pesticide plants. The gases released swept back on the American troops who now suffer an enormous percentage of CFS.

Independent assessment

You will find an assessment of Emmylou's condition by Dr. Ken McGee enclosed. Nash asks everyone to obtain one of these when they feel that they have recovered.

Bedtime reading

Nash sent me copies of two scientific quarterly newsletters.( Health Realities - Winter and Spring 1994) They are all about antioxidants naturally. The most fascinating thing that I gained from them was that our lower bowel radiates the equivalent of 4 to 5 chest x-rays every day !

We couldn't exist without the free radicals that incidentally cause CFS. A foetus uses them to differentiate between cells so that it can develop properly.

A CFS marker

My daughter tells me that the researchers at Newcastle have isolated a CFS 'marker'. It is a substance produced in the urine of CFS sufferers. This is an important development as there will now be a test that doctors can use to determine if a patient has the condition.

Nash is delighted because he says that the same test can be used to show that a patient has been cured. He tells me that Dr Jenny Stark (niece of Doctor Professor Kilroe-Smith) of the South African Institute of Occupational Health is working in the research field, and that she believes that she has identified a protein on a lymphocyte that also acts as a marker.

Financial Assistance

I was starting to think about my taxation return when I suddenly thought that, if the rules haven't been changed, anything spent on medical expenses over $2,000 is tax deductible.

This would mean that anyone who took the protocol in one financial year would at least recover a reasonable sum if they paid tax in that year.

Bananas

If you are a banana fan like me you will be pleased to know that bananas

ARE allowed .

'Bye for this month

Peace and health from Roy and Eileen

This website is maintained for historical and reference purposes only.
The Petrovic CFIDS Health Center has permanently closed its physical premises.
All information is presented for educational and research reference, not for clinical use or medical diagnosis.